The Framework of Co-Leadership-
My work and collaboration with James House has been successful due to a number of factors including:
In the 15 years that I have been working with people who have disabilities, I have continuously gained new insight and information about various conditions. In my line of work, I interact daily with people who are living with different disabilities and conditions. Many have the same disability and yet much like snowflakes, no two people experience their disabilities in the same way. The question I ask today, what exactly is the definition of an expert? Can any person really master any disability or illness to the point of calling themselves an ‘Expert’?
The partnership with James began in December 2009. He made it clear to me during our workout sessions that he understands my goals and has embraced them. Together we may experiment with adaptive exercises, but I am not a specimen and James has never treated me as one. He is courteous and has a thoughtful professionalism. He periodically checks in to gain feedback for exercise progression and fatigue levels as we work.
Like most people who have a disability, I want to be involved, active, and participate. I have always refused to be isolated and my parents constantly supported my full participation. They knew I wanted to be “in” and included, so they helped me find the methods for that to happen by means of modified equipment or a modified approach.
I recently had the opportunity to have lunch and good conversation with two individuals living with Fibromyalgia (among other conditions), but Fibro was their common thread. What struck me though, was how different their experiences were not only with Fibro itself, but even more so, how different their experiences with healthcare, and specifically healthcare professionals, were.