As the date for the camp drew near, I felt myself getting more and more apprehensive. I reached out to friends and family searching for a solution to my thoughts and feelings.
Posts Tagged 'diagnosis'
A very interesting thing happened to me this week. My boss who was previously unaware of my condition approached me randomly at work to vent about her current workload. She spoke to me of taking some time off of work in two weeks to volunteer at a weekend MS camp to show her support for a 20 year old young man that she has thought of for years as an adopted son. She told me that this particular young man was diagnosed with MS at the very young age of 15, and is currently in a wheelchair.
Some of you may have read some of my previous blogs about my personal struggle with being diagnosed with the debilitating disease of MS (multiple sclerosis) at the age of 22. Fortunately for me, most people don’t know about my diagnosis even though not a day goes by that I don’t think about it or am reminded of it.
Multiple sclerosis is a difficult disease to be diagnosed with at a young age. You don’t know when it will take its full toll on you, if ever. I was diagnosed almost 3 years ago at the age of 22. Even till this day, not a lot of people know I have the disease. I have relapsing remitting, so I rarely show signs of the condition, and when I do have symptoms I try to keep them to myself and hide them the best that I can. It isn’t that I’m insecure of having the condition; it’s that I don’t want anyone to have pity on me or treat me any different than before.
The National MS Society just completed a campaign called, “We Keep Moving.” A team of 3 individuals diagnosed with MS traveled to 10 different locations around the United States interviewing people that were diagnosed with MS based on a nation-wide vote. The individuals ranged from a 19 year old girl that was diagnosed at the age of 15 to a man that has lived with MS for over 30 years.
Receiving a diagnosis that you have a permanent, debilitating disease is devastating. No matter what the diagnosis, you have to endure the words, “You have _______.” Those words are probably the hardest 3 words you may ever be faced with in your life or have already had the dreadful experience of being faced with. For me, I heard the words, “You have MS.” They were the hardest 3 words I ever had to endure.