Mother of daughter with Cerebral Palsy Accuses Prime Minister of Betrayal

Jan 24, 2011
Tagged with:

Holly Celyn Vincent  has severe cerebral palsy, quadriplegia, and epilepsy. She is registered with a visual impairment, uses a wheelchair and requires continuous care.  Riven Vincent cares for her daughter full time even sleeping with her daughter who is connected to various medical equipment. Holly is the youngest of four and although her parents want her to stay home, they are thinking about putting Holly into facility care. The family is only allowed six hours per week of respite care and will not be given any additional time.  Respite care is a brief period of rest for families caring for a child or adult with a disability. This care giving time can be in the family’s home or take place outside and a recreation or leisure destination. Holly’s Mother, Riven, states that her family is “crumbling” and may need to place her child in a facility to provide care. In an online post, she stated

“I have no wish to put my daughter into a home. We want to look after her, all I am asking for is a little more support. Without this we simply cannot cope and nor can families up and down the country just like ours.”

She criticizes The Prime Minister, David Cameron, who guaranteed her more respite help for families in their position would be available. However, she states that nothing has been accomplished. Cameron maintains that funding for respite care has increased from 178 million to 198 million Euros and with it more help is now available.

Mrs. Vincent accuses the program of using the funding for concerns other than that of caregivers for persons in need.  Her reasoning comes from the fact that it is the area authorities that are spending as they see fit. There is no assurance that the additional money will be used for respite care. Her online post attracted media attention because of Cameron’s promise to their family.  Her family, however, is not the only family in such dire needs. Many families of children with disabilities have gone through the similar dilemma of putting their child into social services because of lack of respite care.

Author: Melissa